(Albany, New York) Advocates delivered a Petition signed by over 400 members of New
York State’s HIV and LGBTQ+ communities to Governor Kathy Hochul this afternoon
calling for concrete action in her Fiscal 26-27 Executive Budget to demonstrate New York
State's ongoing commitment to Ending the HIV Epidemic in the face of unprecedented federal
attacks.
This December 1st, for the first time since the global commemoration was established in
1988, the United States federal government chose not to recognize World AIDS Day–
which for 37 years has provided a critical opportunity to recommit to ending the HIV
epidemic and to remember lives lost.
This follows a series of federal attacks on Medicaid and realized or threatened funding cuts
to the national public health infrastructure and programs key to achieving the end of the
epidemic (healthcare, housing, harm reduction, among others) and federal actions
targeting the LGBTQ+ and other communities disproportionately impacted by the
Epidemic.
New York State, always at the forefront in the fight against AIDS, must meet federal threats
to our national HIV response by demonstrating renewed commitment from leadership to
Ending our New York HIV Epidemic in every community and population.
The Petition calls for concrete action in the Executive Budget to:
• Ensure the critical NYS funding required to sustain the State’s HIV response
and robust Ending the Epidemic efforts. Continued investments by the State in
the programs and services that have driven our progress towards ending our HIV
epidemic have never been more critical during this time of federal attacks on
insurance coverage and the public health system.
• Act to afford all NYS communities the option to provide rental subsidies to
public assistance eligible households with HIV experiencing homelessness or
housing instability. Since the statewide HIV Emergency Shelter Allowance benefit
was established in the 1980s, it has been available only to people with HIV facing
homelessness in NYC. As a result, as many as 2,800 households living with HIV
outside NYC remain homeless or unstably housed—overwhelmingly LGBTQ, Black,
and Hispanic New Yorkers disparately impacted by HIV and poverty.
• Invest in strategies to realize the full potential of HIV prevention by advancing
equity in access and uptake of all PrEP modalities, including new long-acting
injectables. Despite PrEP’s proven effectiveness, access and uptake remain deeply
unequal, with Black and Hispanic New Yorkers representing 76% of new HIV
diagnoses in 2023, but only 22% of PrEP prescriptions. New York must ensure
broad, equitable access to all PrEP options, including one-a-day pills and
bimonthly injections, to strengthen HIV prevention efforts statewide. Ultra-long-
acting injectable PrEP, approved by the FDA this year, holds particularly
transformative promise, requiring only two injections a year for 96% to 100%
effectiveness in preventing HIV infection.
"I am proud to sponsor and champion equitable access to HIV housing assistance in the
New York State Assembly," said Assembly Member Harry Bronson of Rochester. "There
has never been a more important time for New York State to sustain and advance our
efforts to end HIV as an epidemic and to stand with the HIV and LGBTQ communities as we
face unprecedented challenges posed by actual and threatened federal funding cuts and
Attacks."
“Our HIV and LGBTQ communities are facing many-layered threats to Medicaid, systems of
care, and Ryan White and other federal funding sources that have been fundamental to the
U.S. and New York HIV responses—in addition to attacks on the essential rights of
members of our community,” said Charles King, Chief Executive Officer at Housing
Works, and Co-Chair of the NYS AIDS Advisory Council Ending the Epidemic Sub-
Committee. “We urgently need to know that the Governor and the State are committed to
sustained progress towards our Ending the Epidemic goals.”
"At Evergreen Health in Buffalo we know that we can count on the continued commitment from
New York State's leadership to advance our Ending the Epidemic goals," said Mike Lee, Chief
Operating Officer at Evergreen Health. "Our state has made historic progress but much remains
to be done to end this epidemic in every New York population and community."
“While New York has made measurable progress toward Ending the Epidemic, stark
disparities in HIV outcomes persist for Black and Latino New Yorkers,” said Shirley Torho,
President and Chief Executive Officer of the National Black Health Leadership
Commission on Health (Black Health). “In the face of a federal retreat from health equity,
sustained and proactive New York State leadership is essential to advance equitable HIV
prevention, care, and treatment for all affected communities.”
“We have long understood that housing is healthcare for people with HIV, and that without
a safe, stable place to live it’s not possible to fully benefit from HIV treatment, sustain
health, or prevent new infections,” said Perry Junjulas, Executive Director of the Albany
Damien Center. “Continuing to deny this benefit in Albany and other communities outside
NYC is fundamentally unfair, perpetuates HIV health inequities, undermines the State’s
ability to end our HIV epidemic, and costs the State millions in avoidable Medicaid
spending on crisis care and new HIV infections.”
“HIV prevention is an essential component of our plan to end New York’s HIV epidemic,”
said Kimberleigh Smith, Executive Vice President of Public Policy and
Communications at Callen-Lorde Community Health Center. “We simply can’t realize
the potential of PrEP – including game-changing long acting injectables – until we invest in
the culturally tailored PrEP education, navigation, and services needed to reach the
communities most vulnerable to HIV infection.”
"In Rochester we are fully committed to ending our HIV epidemic," said Mary Beth Walker,
Trillium Health’s Vice President of Marketing, Government Relations, and Public
Relations. "New York State has long been a leader in our HIV response and we look forward
to sustained New York State funding for the prevention and care efforts critical to our
continued progress."
“Here in Syracuse and across Central New York, we see how sustained state leadership
saves lives and strengthens communities,” said Lisa Alford, Chief Executive Officer at
ACR Health. “As federal support becomes increasingly uncertain, New York must reaffirm
its commitment to Ending the HIV Epidemic by protecting core HIV programs and investing
in innovative prevention strategies like long-acting injectable PrEP, paired with the
education and access needed to reach the communities most impacted.”
The petition was circulated by the End AIDS New York Community Coalition, a group of over
90 health care centers, hospitals, and community-based organizations across the State
committed to realizing the goals of our historic New York State Blueprint for Ending the
Epidemic (EtE), a set of evidence-based recommendations for ending AIDS as an epidemic
in all New York communities and populations.