AIDS Issues Update Blog

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ACTION ALERT: Tell Congress How the Ryan White Program Has Affected Your Life!

Posted by Sunny Bjerk , May 20, 2013

ACTION ALERT: Tell Congress How the Ryan White Program Has Affected Your Life!

Image from the Kaiser Family Foundation

The Ryan White program is the country’s third largest federal funding source for HIV/AIDS healthcare, and is estimated to serve over half a million people living with HIV/AIDS in the country.

As we reported earlier in the year, the program is set to expire in its current form on September 30, 2013, and the Federal AIDS Policy Partnership’s (FAPP) Ryan White Workgroup* is working hard to educate Congress on the importance of a continued, robust Ryan White Program as it prepares to implement the Affordable Care Act.

To this end, we need your help. Congress needs to hear and understand the impact the Program has had in the lives of people living with HIV/AIDS, and how we cannot afford a lapse in the Program’s renewal.

We are asking for you to send your story as to how the Ryan White Program has impacted your life. In one page or less please include:

  • Your Name, as you would like it shared
  • Your City and State
  • What services you received?
  • How your life has changed through the Ryan White Program (T-cell, viral load, quality of life, income, overall health and mental health, etc.)?
  • What might have happened had you not been connected to Ryan White Services

Please send your submission to or fax to 202-408-1142 by June 7th, 2013.

If you would like to get involved with FAPP’s Ryan White Visioning and Framing Subcommittee, please send your name, phone number and e-mail to and/or

Thanks for your help and we will keep you updated with our work with Congress!

Follow the Update blog on Twitter @housingworks.

*Established in 2002, the Federal AIDS Policy Partnership (FAPP) is a national coalition of local, regional, and national organizations advocating for progressive federal HIV/AIDS legislation and policy. FAPP members are organizations that devote significant resources in support of federal HIV/AIDS public policy advocacy. FAPP is managed by a twenty-person Convening Group that consists of at-large members and a liaison from each of the affiliated working groups.

The Ryan White Work Group is an affiliated working group of the Federal AIDS Policy Partnership committed to ensuring that the Ryan White Program continues to provide appropriate primary care, treatment and support services to uninsured and underinsured individuals living with HIV/AIDS. The Work Group works on the reauthorization of the Ryan White CARE Act, implementation of changes to the law, interaction with other private and public health programs, and on-going communication with HRSA.

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